May 2007  

In this issue…

Youngster’s battle with sickle cell anemia is inspiration for others

New Book for Families - “My Sickle Cell: A family’s Journey Living Everyday with Sickle Cell Disease”

Nursing Home Residents in Pain

Massage and acupuncture reduce pain after cancer surgery

Military and Veterans Pain Care Act of 2007

Palliative Medicine “Little-Known But Fast-Growing”

Pain Notes

Resources

Events

Pain Assessment and the Cognitively Impaired Patient

Youngster’s battle with sickle cell anemia is inspiration for others

Twice-a-week physical therapy sessions and monthly blood transfusions have become a way of life for 12-year-old Caleb Booker of Portageville. The Portageville Middle School student, who is the son of Roy and DeLois Booker, was diagnosed at birth with sickle cell disease, a painful and debilitating blood disorder that primarily affects the black population.

 

“With sickle cell, mom and dad are both a carrier of the gene and have a one -in-four chance of having a child with sickle cell disease,” DeLois Booker said. In a person who has sickle cell, the red blood cells that carry oxygen flatten out, or take the shape of a sickle, which is how the disease received its name, Booker explained.

Reprinted from Sickle Cell eNewsletter April 2007.


New Book for Families - “My Sickle Cell: A family’s Journey Living Everyday with Sickle Cell Disease”

This book was written from a child’s perspective with the intention of inspiring other families that are faced with a loved one that has or has been diagnosed with Sickle Cell Disease. It gives an account of day-to-day struggles in dealing with the disease. It also tells of the impact it has had on her family members. Ordering information is available online


Nursing Home Residents in Pain

A study from England finds an epidemic of untreated pain in care homes. Seventy-four percent of residents were found suffering with pain. You can read the full story on the BBC News Web site.

 

You can also watch an online video which interviews a family member of a nursing home resident who died in pain.


Massage and acupuncture reduce pain after cancer surgery

Massage and acupuncture are effective in decreasing pain and depression following surgery in cancer patients, according to a UCSF study.

 

The findings of the randomized controlled clinical trial are reported in the March 2007 issue of the “Journal of Pain and Symptom Management.”

 

“This pilot study confirmed that pain after surgery decreased when patients underwent a combination of massage and acupuncture. This is a significant finding because there are implications for further study to see if these therapies should be offered to hospitalized patients for symptom management,” said Wolf Mehling, MD, lead author and UCSF assistant professor of family and community medicine. 

You can view the article in its entirety on the eMaxHealth.com Web site.


Military and Veterans Pain Care Act of 2007

SUMMARY

Section 1: Short Title
Provides that the title of the bill shall be the “Military and Veterans Pain Care Act of 2007.”

Section 2: Findings
Include findings with respect to:

 

·   Acute and chronic pain as prevalent among those wounded in combat

·   Chronic pain as a cause of disability in the veteran population

·   Pain care as a priority of the DOD and VA health and medical systems


Section 3: Pain Care Initiative in Military Health Facilities Requires the Secretary of Defense to develop and implement a pain care initiative in all military health care facilities to ensure that all personnel receiving treatment in military health care facilities are assessed for pain at the time of admission or initial treatment, and that they receive appropriate pain care.


Section 4: Pain Care Standards in Tricare Plans
Requires similar protections for military personnel and dependents enrolled in Tricare plans.


Section 5: Pain Care Initiative in Veterans Health Care Facilities
Requires the Secretary of the VA to develop and implement a pain care initiative in all VA health care facilities to ensure that all veterans receiving treatment in those facilities are assessed for pain at the time of admission or initial treatment, and that they receive appropriate pain care.

Reprinted from the American Pain Foundation Web site.


Palliative Medicine “Little-Known But Fast-Growing”

“Teaming up to ease the pain; palliative care comforts patients while easing burden on caregivers,” recently appeared in USA Today. To demonstrate how palliative care is delivered, the article includes the story of one family’s experience with palliative care at Dartmouth Hitchcock Medical Center. According to the article, palliative care “addresses two related problems for cancer patients: poor coordination in the health care system and the heavy burden faced by caregivers.”

 

Palliative care, unlike hospice, can be offered to any patient diagnosed with a serious illness. Palliative care focuses on both “relieving symptoms and improving quality of life in the seriously ill.” Patrick Coyne, clinical director of palliative care at Virginia Commonwealth University’s Massey Cancer Center in Richmond, notes that palliative care is “one of the few areas of medicine practiced as a team” and this team creates a care plan that is goal-oriented. With the projected increases in chronic illnesses, says the article, the need for palliative care is expected to grow.

 

Thomas Smith, chairman of hematology/oncology and palliative care at the Richmond cancer center, says that offering palliative care saves money in a variety of ways and allows hospitals to “recoup their investments in palliative care.” One 2003 study revealed that when patients were transferred from regular hospital floors to palliative care units, costs were cut by 57%. “While his unit makes only a small profit—about $20,000—Smith says it saves the hospital about $1 million a year.” Smith explains that these cost savings are possible because:

 

·    Palliative care improves coordination of care and saves on staff time and tests costs.

·    Palliative care aligns with patients’ values and “lets terminally ill patients decline invasive procedures they may not really want.”

·    Palliative care prevents crises and there are fewer returns to the emergency room.

 

According to the Center to Advance Palliative Care, currently about 30%, or 1,240, of hospitals offer palliative medicine. This number has nearly doubled since 2000. The article also notes, though, that patients outside of hospital care deserve coordinated care and Ira Byock, director of palliative medicine at Dartmouth, says that this can be challenging. “At the moment, the whole American system works against you.” says Byock. “That can change, and it must change. Consumers will have to demand it.”

(USA Today, 4/26)


Pain Notes

·  The retrial of physician William Hurwitz has once again ended with Hurwitz found guilty of 16 counts of drug trafficking. Pain management advocates have supported Hurwitz, while federal prosecutors have called him a “common drug dealer.” (The Washington Post, 4/28)

 

·  The York Dispatch (Pennsylvania) published an opinion by Ronald Fraser, PhD, DKT Liberty Project, who says the there is a war against pain doctors and their patients. Fraser shares about a new book by John Flannery, “Pain in America, and How Government Makes it Worse.” The book says that the DEA “seems to have as its objective controlling the relationship between the physician and the chronic pain patient by criminalizing the prescription of narcotics and discouraging the existence of any physician-patient relationship by which to heal the chronic pain.” Fraser believes that “drug laws have become a cover for the erosion of civil rights once protected by the U.S. Constitution.” (The York Dispatch, 4/17)

Reprinted from The Carolinas Center Weekly Updates 4/2007


ResourcesAmerican Pain Foundation

The American Pain Foundation has another on-line resource for those coping with cancer pain. Cancer Pain: Your Guide to Relief™ provides information, coping strategies and tools to help cancer patients and their caregivers understand the basics of pain management and better communicate with their doctors. This has personal stories, medication fact sheets, reporting & management tools and tips on how to work with your medical team. Learn more about cancer pain and what you can do by reviewing the Spotlight on Cancer Pain section of our Web site.

 

For the month of May: BFB Tapes and CDs on Sale!

 

$5 Off each tape/CD OR Buy 3, Get One Free! Enjoy a large range of topics and great speakers! Check out the online listing.

 

This applies to all recordings prior to December 2006.

The 2007 series is not on sale.


EventsBreakfast for Brainiacs®

Breakfast for Brainiacs® Audio Conference - Responding to the Wounds of Warriors: Hospice Interventions

Tuesday, May 22 from 8:30-9:30 a.m.

Deborah Grassman, ARNP, VA Medical Center, Bay Pines, FL

 

Wellness Coalition AmericaWellness Coalition America 3rd Anniversary Celebration

Live Auction and Band

May 31st

Charlotte, NC

 

Putting the Pieces Together: Update in Pain Management 2007

June 13 AM and PM sessions available

Room 300 - Oconee Memorial Hospital - Seneca, SC

Maribeth Kowalski, BS, PharmD

Fee $55 for non-members, $10 for AHEC members needing ACPE Pharmacy credit; free for AHEC members who do not need ACPE Pharmacy Credit

 

Dialogue for Action Colorectal Cancer

August 5th Reception Capital City Club, Columbia

August 6th Dialogue for Action Downtown Marriott, Columbia

 The Carolinas Center for Hospice and End of Life Care

The 2007 Caring Conference

September 16–18

Sunset Beach, NC

 

The Carolinas Pain Congress

September 27–28

Charlotte, NC


Pain Assessment for the Cognitively Impaired Patient

Pain Scale and Assessment Resources:

State of the Art Tools for Assessment of Pain in Nonverbal Adults

 

Herr and Decker Acute Pain Management in Older Adults City of Hope

 

City of Hope: Pain Assessment and the Cognitively Impaired

 

Course:

Breakfast for Brainiacs® on CD-Rom: Pain Assessment and the Cognitively Impaired Hospice Patient

Presented by Stephen Marsh, MD


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